Links to further information

Click on a subject category to go to links for that topic.

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Beginners information

• WebMD topic overview of Non-Hodgkin's Lymphoma
• Merck Manual
• Patient - Centered Guide
• The Lymphoma Information Network
• http://www.lymphoma-net.org
• http://www.cancereducation.com/ specializing in multimedia material on many cancer topics and personal stories.

Bloodwork

• American Society of Hematology
  Amazing resource for finding abstracts on the latest breakthroughs in NHL research and information about blood diseases.
• Introduction to the Hematopoietic System
  Everything you ever wanted to know about how your blood works, lives and dies.
• The blood and how it works
  A great site that explains how all your blood cells work, and what they do. 
• Blood cells and the CBC
  Another good site that talks about the various cell types and what they do.

Cancer Organizations

• Lymphoma Research Foundation (LRF) 
  Probably one of the best links to visit again and again. They offer an amazing variety of services
• Lymphoma focus (broadcast branch of LRF)
  The on-line web cast branch of the LRF. Great place to find interviews with leading researchers
• HealthTalk Interactive Lymphoma Education Network
  An excellent resource full of streaming interviews, breaking news and research publications about NHL
• Lymphoma Foundation Canada
  The Canadian sister organization of the LRF, specific to Canadians
• Lymphomation; Patients Against Lymphoma (Karl Schwartz)
  Hospice Net
  An excellent resource for patients and families facing life threatening illness. They have excellent tools for dealing with end of life issues, grief and hospice care.
• Association of Cancer on-line resources
  A good resource for support and discussion groups, and many other cancer resources
• Dream Foundation
  Like the children's "Make a wish" foundation, this group grants dreams to terminally ill adults
• Cancerbackup - UK
  The leading cancer information site in the UK. Excellent resource for anyone from anywhere
• Research fund for Waldenstroms
  A web site dedicated to providing information about Waldenstroms Macroglobulinemia
• Patient Advocate Foundation
  An organization to help patients in the USA deal with insurance coverage issues.
• Camp Lejeune water contamination website
  For USA Marines who were stationed in Camp Lejeune, NC between 1957-1987
• Home Health Care Agencies
  Help finding health care services available in your area including services provided in your own home
• The Social Security Disability Help organization
  Helping patients with NHL who are disabled wade through the process of obtaining their SSDB benefits

Chemotherapy

• Facts about Intravenous catheter lines
  A good place to learn about catheters
• IV source book
  A good place to get a look at the various ports etc. This is not really a patient web site, but a place where they sell ports and other supplies
• BC cancer agency chemotherapy protocol information
  Perhaps one of the best places to find detailed information about specific chemo protocols
• Cancercare Ontario's chemotherapy protocols
  Similar to the BC cancer agency but with additional information including costs of treatment (in Canada)
• Lab tests online
  A great site to learn about many medical tests, not just cancer specific tests. It explains very well, how the tests are done, what they are for and what results to expect.
• National Cancer Institute - Lymphoma treatment and diagnosis
  The single most comprehensive site on the internet for specific, and detailed information on lymphoma and its treatment.
• Kimball's biology pages - what are monoclonal antibodies and how do they work
  An excellent explanation of how MoAB's work. Go to the home page and find information and explanations for all your biology questions. An excellent site.
• The Oncologist - MoAB therapy in lymphoid malignancies
  Another excellent site that explains how Monoclonal Antibody therapies work.

Complimentary therapies

• When Lay persons give medical advice (from Lymphomation
• The problem with testimonials (from Lymphomation)
• Cancer nutrition center
  A site to help you learn about proper nutrition when dealing with Cancer
• BC cancer agency - alternative therapies
  Information about many of the leading alternative cancer  therapies from the experts.
• Quackwatch
  The single most important resource for those wishing to investigate fraudulent claims, alternative therapies, quackery and more. A "must have" site for anyone wanting to know the "facts"

Drugs

• RxList
  An excellent place to get highly detailed, and technical information about a prescription and non-prescription drugs. They have a very thorough database
• BC cancer agency complete drug list
  Also highly detailed information about cancer specific drugs
• Mayo clinic drug database
  Another excellent drug database
• Rituxan
  Rituxan's official web site
• Interferon alfa (Intron A)
  Intron A is approved for the treatment of non-hodgkins lymphoma. The goal of our site is to educate patients and their support team about INTRON A therapy, its indications, its uses, and its possible side effects.
• Neupogen
  Neupogen's (filgrastim) official web site. Neupogen is G-CSF which is a growth factor which promotes the production of neutrophils.
• Leukine
  Leukines (Sargramostim) official web site. Leukine is GM-CSF which is another growth factor. It promotes Neutrophils, Macrophages, and dendritic cells.
• Neulasta
  Neulasta's (pegfilgrastim) official web site. (Neulasta is the longer lasting version of Neupogen)
• Procrit
  Procrit's (Epoetin alfa) official web site
• Food and Drug Administration homepage
  The name says it all
• CanadaDrugs.com
  Discount prescription and over the counter drugs from a Canadian on-line pharmacy.
• RXNorth
  Another on-line site where U.S. citizens can buy their prescription drugs from Canada at a dramatic discount over U.S. prices.
• Canada PayLessRX
  CanadaPaylessRx.com offers savings up to 80%+ when buying over the counter (OTC) and Prescription drugs. We also reward your patronage by allowing you to earn up to 4% on all referrals you send to our site.
• Canada Drugs
  Canada drugs is a Canadian on-line pharmacy where U.S. citizens may buy their OTC and  prescription medications at a significant discount over U.S. prices.
• Needy Meds
  Needy Meds is a website that provides all the necessary information for citizens of the USA to find the free drug programs for all the major pharmaceutical companies.
  

Finding a doctor

• The American board of Medical Specialties
  This site allows you to find a board certified doctor in the specialty of your choice, in your state
• The American Medical Association Physician select
  Find a doctor by name, or specialty
• Best doctors
  Get a referral to a qualified doctor in the USA

Immune system basics. 

Here are some links that do an excellent job of explaining how the immune system works.

• The Immune and Lymphatic System
  Another excellent site that gives a good explanation with lots of pictures.
• Lymphatic system and immunity
  Here is a another good site.

Medical Journals and reference

Each of the links below takes you to the Medical Journal or reference named. Many of these journals offer their articles free after a period of time has elapsed from publication. The first one listed "Amedeo" publishes abstracts from hundreds of journals every week. You just select the type of cancer or disease you are interested in, and you will be presented with a list of relevant abstracts from relevant journals each week. A great place to keep up on your research.

• Amedeo
• American Journal of Clinical Pathology
• Blood
• Journal of Clinical Oncology
• The Lancet
• Oncolink Journals Page
• Haematology by the Cancer Network
• The Oncology Interactive Education Series
  A thorough CD-Rom education series.
• Medscape (best overall research site)
• PubMed
• Nature - Cancer journal
• The Oncologist Journal
• On-line medical dictionary
• American Medical Association
• Medbroadcast.com
• The MEdIC Home Page (Medical Education Information Center)
• MedicineNet - A free medical reference
• Webpath - pathology information
• Cancerconsultants current news

NHL – Indolent

• The indolent lymphomas (on-site page)
• CLL Topics
• The Merck Manual - Malignant Lymphomas
• The Indolent lymphomas

NHL – Aggressive

• The aggressive lymphomas (on-site page)
• The Merck Manual - Malignant Lymphomas

Pathology

The title says it all. If you want to read about pathology, and in most cases pathology of lymph nodes, then click on any of the sites below. Most have pictures too.

• Pathology of Lymph Nodes: Dr Norman Levy (Dartmouth)
• Cool pathology slides for you to look at
• Ed Uthmans Pathology page with Images
• Immunohistochemistry chart (excellent resource for CD marker information)

Pharmaceutical companies

Each of the links below goes directly to the Pharmaceutical company listed or their web site about the specific product listed.

• Roche (Rituxan Canada)
• Genentech (Rituxan USA)
• Biogen idec (Zevalin)
• Schering (Interferon)
• Genta (Genasense)
• Celgene Corp (thalidomide)
• Entremed (anti-angiogenesis)
• Genaera (anti-angiogenesis)
• Immunomedics
• Novaris (Gleevec)
• GlaxoSmithKline (Bexxar USA)

Personal pages

Once again the title says it all. Click any of the links below if you want to read personal stories, visit personal web sites and maybe just get to know some individuals who took the time to share their NHL experience with the world.

• Robert Miller's Lymphoma Survivor home page
• Marly’s primary mediastinal diffuse large B-cell non-Hodgkin’s lymphoma site
• Jerry Hagan
• The Furry Monkey by Karen Theobald

Radiation principles

• Princeton University radiation safety basis
  A good lesson on how radiation works from Princeton University
• Radiation and risk
  A good discussion of the risk of radiation for patients.
• Understanding Radation -Alpha, Beta and Gamma
  From the U.S.A. Environmental Protection Agency, a very good site that explains what the differences are between them, in laymans terms.
• Alpha, Beta and Gamma radiation - what are they?
  From a site that sells radiation detectors (but it is a good explanation.

Radiation (treatment)

• Cancer info for patients
  An excellent place to find out information about what to expect when you have radiation treatments to specific areas of your body
• Imaginis - Cancer treatment with radiation
  A good overview of radiation treatment for all types of cancer.
• RadioImmunotherapy agents - How do they work
  Just how do those radioactive monoclonal antibody therapies work? Click here to find out

Transplantation

• Explore Stem Cells
  This is an excellent site that gives you all the information  you need to know about stem cells. It has many articles by experts to help you understand what stem cells are, and how they are used.
• Rush Cancer Institute (Chicago) virutual tour of a transplant
  An excellent explanation of the whole procedure. Great for both a patient who is about to undergo a transplant or for friend's/family who want to understand it better.
• NHL Cyberfamily SCT information section
• Bone marrow transplant Table of Contents
  A comprehensive on-line book about the whole Bone Marrow Transplant procedure
• National marrow donor program
  The web site for the U.S. national marrow registry program.

Treatment centres

• The Mayo Clinic
• MD Anderson Cancer Center (Houston)
• Memorial Sloan Kettering Cancer Center (New York)
• Dana Farber ( Boston)
• Princess Margaret (Toronto)
• Sunnybrook (Toronto)
• BC Cancer Agency (Vancouver, Fraser Valley, and Victoria)
• City of Hope Cancer Center (Duarte California)
• Fred Hutchinson Cancer Center (Seattle, Washington)
• National Comprehensive Cancer Network Centres (USA)
• List of Cancer Centres in the UK