Non Hodgkin's Lymphoma
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 Frequently Asked Questions (FAQ) 

 

  1. What are my mailing list options

  2. How do I subscribe to the caregivers mailing list

  3. How do I subscribe to the BMT-talk mailing list (Bone marrow transplant)

  4. What is the normal size for a lymph node

  5. What are normal blood counts, and what do my counts mean?

  6. What exactly is a haemopoietic stem cell?

  7. Is there an on-line medical Dictionary where I can find look up medical terms?

  8. What questions should I ask my oncologist/haematologist

  9. What tips do you have for caregivers?

  10. What kinds of new treatments are there for NHL

  11. What are the causes of NHL?

  12. Can you explain what HLA matching is?

  13. Can I get unapproved treatments on a compassionate use basis?

  14. Are there any statistics about NHL?

  15. Where can I get the meaning of the abbreviations used on the mailing list?

  16. What about those chemotherapy protocol abbreviation?

  17. What is this cell cycle that chemotherapy works on?

  18. What is the lifetime limit of chemo that I hear about?

  19. What is this I heard about free flights for cancer patients?

  20. Can I go on a trip while having treatment?

  21. COBRA and switching health insurance

  22. What benefits are available to U.S. veterans with NHL?

  23. Do you people ever meet ?

  24. What is the relationship between Simian Virus 40  (SV40) and NHL?


What are my mailing list options

There are three types of mail delivery you can have

a) Individual mails (about 20-40 per day)
b) Daily digest (25 mails combined into one so you only get 1-2 per day)
c) No mail at all, read messages from the web site (great for going on vacation so you don't have to unsubscribe, or come home to a mailbox with 300+ messages)

The simplest way to change your mail or subscription options is to go to the main Yahoo "MyGroups" webpage and change them there. Just click the link below to go there now.
http://groups.yahoo.com/mygroups

You can also change your options via e-mail. For each option below all you have to do is send a blank e-mail message to the address shown below the option you want. That's it.

To subscribe to our group
nhl-subscribe@yahoogroups.com

To unsubscribe from our group
nhl-unsubscribe@yahoogroups.com

To change your delivery mode to daily digest
nhl-digest@yahoogroups.com

To change your delivery mode to no-mail read from web only.
nhl-nomail@yahoogroups.com

To change your delivery mode to normal individual e-mails
nhl-normal@yahoogroups.com


How do I subscribe to the caregiver's mailing list (or any ACOR list)?

E-MAIL:  listserv@listserv.acor.org
SUBJECT - blank
MESSAGE: Subscribe CAREGIVERS yourfirstname yourlastname

How do I subscribe to BMT-Talk

BMT-Talk is an email support group with information on Bone Marrow Transplants.
E-MAIL:  listserv@listserv.acor.org
SUBJECT:  blank
MESSAGE: Subscribe BMT-TALK yourfirstname yourlastname

To unsubscribe to any ACOR list just send a message to: listserv@listserv.acor.org
SUBJECT: blank
MESSAGE: signoff LISTNAME

For a full listing of ACOR cancer support mailing lists just visit:
http://www.acor.org/mailing.html

Do you people ever meet

Yes indeed we do. From time to time a list member will organize a "family" gathering in their neck of the woods. People from all over attend these get togethers and have a great deal of fun. We also meet every year at the big Lymphoma Research Foundations annual convention. Each year it is in a different city. In 2000 and 2007 it was New York, in 2001 it was Chicago, in 2002 Los Angeles, 2003 Washington DC, 2004 San Francisco, 2006 in Atlanta.  Click the link below to go to the photo section of some of our gatherings:
Family gatherings photo album

Click here to see any current events

 

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