Frequently asked questions

On this page your find answers to the most commonly asked questions about lymphoma and our NHL Cyberfamily support group.

The NHL Cyberfamily group

The website for information about non-Hodgkin's lymphoma. To join our on-line support group click button below.

Inspiration

Click here to visit our inspiration page. Here you'll find poems to comfort the soul, caregiver tips and some funny things too.

Research Library

Our research library page contains ASH abstracts, ASCO abstracts and other links to the latest innovations and research into lymphoma.

Treating non-Hodgkin's Lymphoma

Find information about the standard treatments, latest innovations in treatment and more

get in touch

Frequently Asked Questions?

  1. What are my mailing list options
  2. How do I subscribe to the caregivers mailing list
  3. What is the normal size for a lymph node
  4. What are normal blood counts, and what do my counts mean?
  5. What exactly is a haemopoietic stem cell?
  6. Is there an on-line medical Dictionary where I can find look up medical terms?
  7. What questions should I ask my oncologist/haematologist
  8. What tips do you have for caregivers?
  9. If I have Non-Hodgkin's Lymphoma, can I qualify for Social Security disability benefits in the USA?
  10. What kinds of new treatments are there for NHL
  11. What are the causes of NHL?
  12. Can you explain what HLA matching is?
  13. Can I get unapproved treatments on a compassionate use basis?
  14. Are there any statistics about NHL?
  15. Where can I get the meaning of the abbreviations used on the mailing list?
  16. What about those chemotherapy protocol abbreviation?
  17. What is this cell cycle that chemotherapy works on?
  18. What is the lifetime limit of chemo that I hear about?
  19. What is this I heard about free flights for cancer patients?
  20. Can I go on a trip while having treatment?
  21. COBRA and switching health insurance
  22. What benefits are available to U.S. veterans with NHL?
  23. Do you people ever meet ?
What are my mailing list options

There are three types of mail delivery you can have

a) Individual mails (about 5-25 per day) b) Daily digest (25 mails combined into one so you only get 1-2 per day) c) No mail at all, read messages from the web site (great for going on vacation so you don't have to unsubscribe, or come home to a mailbox with 300+ messages)

The simplest way to change your mail or subscription options or to unsubscribe from the group is to go to the main Yahoo "MyGroups" webpage and change them there. Just click the link below to go there now.

Yahoo My Groups page - membership options

You can also change your options via e-mail. For each option below all you have to do is send a blank e-mail message to the address shown below the option you want. That's it.

 
To subscribe to our group

nhl-subscribe@yahoogroups.com

 
To unsubscribe from our group

nhl-unsubscribe@yahoogroups.com

 

To change your delivery mode to daily digest

nhl-digest@yahoogroups.com

 

To change your delivery mode to no-mail read from web only. This is perfect for when going on vacation, or otherwise have limited access to your e-mail.

nhl-nomail@yahoogroups.com

 

To change your delivery mode to normal individual e-mails

nhl-normal@yahoogroups.com

 


How do I subscribe to the caregiver's mailing list (or any ACOR list?

E-MAIL:  listserv@listserv.acor.org
SUBJECT - blank
MESSAGE: Subscribe CAREGIVERS yourfirstname yourlastname

To unsubscribe to any ACOR list just send a message to: listserv@listserv.acor.org
SUBJECT: blank
MESSAGE: signoff LISTNAME

For a full listing of ACOR cancer support mailing lists just visit: http://www.acor.org/mailing.html


Social Security disability benefits for citizens of the USA

Yes, you can. You pay into the US Social Security system every time you receive a paycheck. Therefore, you are entitled to benefits if you can no longer work due to a disability. As long as your NHL (or the side-effects of your treatment) debilitate you to the point where you can no longer perform any kind of meaningful work, you are eligible to receive benefits.

Unfortunately, this process is not easy and can take up to a year or more before you are approved. There are some vital steps you should review before you apply or consider applying for Social Security disability benefits.  The first and most important step in applying for Social Security disability is that you cannot be working. If your application states that you are working, the Social Security administration will deny your application immediately. Secondly, you have to be able to prove that you are not capable of doing any type of meaningful work, whether it be labor-intensive or sedentary. Third, you will need all medical documentation from your doctors explaining both the severity of your condition as well as the side-effects of your treatment. Lastly, you should proofread your application a number of times to provide all fields and relevant information are filled out before sending it in, as an incorrectly filled out form will result in an immediate denial by the SSA.  

For more information about Social Security Disability and for a free evaluation of your case, check out  Social Security Disability Help.

 

Do you people ever meet

Yes indeed we do. From time to time a list member will organize a "family" gathering in their neck of the woods. People from all over attend these get togethers and have a great deal of fun. We also meet every year at the big Lymphoma Research Foundations annual convention. Each year it is in a different city. In 2000 and 2007 it was New York, in 2001 it was Chicago, in 2002 Los Angeles, 2003 Washington DC, 2004 and 2008 San Francisco, 2006 in Atlanta.

Click here to see any current events

Click here to see our photo gallery of our many gatherings.

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